E.L.E.F. Register
United Kingdom

Name of Group (in native language)

Lupus U.K.

Name of Group (in English)

Lupus U.K.

Chairperson

Ronnie Gourley

Director

Brian Hanner

Official Address & Tel. No.

St James House
27-43, Eastern Road
Romford/Essex RMI 3NH
Tel.: +44 1708 73 12 51
Fax.: +44 1708 73 12 52
E-Mail : headoffice@lupus-uk.freeserve.co.uk

International Contact

Yvonne Norton

Address of Contact & Tel. No.

8, Legge Lane, Coseley
West Midlands
WV14 8RQ
Tel. : +44 19 02 49 82 36
E-Mail: yvonne@wmlg.freeserve.co.uk

Year Group established

1978

Number of Members

7500

Population

57.918.000

Aims of Group

Aid communication between Lupus sufferers. Help promulgate information on all aspects of SLE with the general public and the medical profession on symptoms and problems of Lupus. Publicise the Group's existence. Raise funds to enable practical help to be given to people with Lupus, and principally towards research.

Name of Magazine & Frequency of Publication

" News & Views " 3 times a year

Activities of Group

Organising Contacts and Regional Support Groups throughout the UK. Providing an educational and publicity programme for sufferers, general public and medical profession. Funding of research and patients services.

ELEF Register is managed by Maria Toledo (Belgium) maria.toledo@swing.be
ELEF in Internet is managed by Maria Teresa Tuccio (Italy) mariateresa@lupus-italy.org

[ELEF Register]

E.L.E.F. Register United Kingdom