E.L.E.F. Register
Sweden

Name of Group (in native language)

SLE/Sjögrenrådet - Rheumatikerförbundet

Name of Group (in English)

The SLE-Sjögren-group

Chairperson/Director

Bettan Forsmark

Official Address & Tel. No.

Sandbackavägen 32L
903 46 Umeå

Tel.: +46 90 13 00 65 or 46 739 1646 83
E-Mail: bettan.forsmark@sv.se

International Contact

Gunilla Wassenius

Address of Contact & Tel. No.

Almekärrsvägen 109
S - 44339 Lerum
Sweden

Tel.: +46 302 14309
Fax.: +46 302 14309
E-Mail: lewass.lerum@swipnet.se

Year Group established

1986

Number of Members

1200

Population

8.837.500

Aims of Group

Safe-guard the interests of lupus sufferers. Promote and provide information on all aspects of lupus to members, professionals and the public. Support exchange of experience between lupus sufferers and their families. Support and stimulate SLE research.

Name of Magazine & Frequency of Publication

Bulletinen 4 times a year.
SLE-Sjögrenrådets Infoblad 4 times a year to 250 contact persons

Activities of Group

Local, regional and national support groups. Metings, lectures, seminars and exhibitions. Publishing articles, leaflets, etc. besides our periodical SLE-Bulletinen.

ELEF Register is managed by Maria Toledo (Belgium) maria.toledo@swing.be
ELEF in Internet is managed by Maria Teresa Tuccio (Italy) mariateresa@lupus-italy.org

[ELEF Register]

E.L.E.F. Register Sweden