E.L.E.F. Register
Portugal

Name of Group (in native language)

Associação de Doentes com Lupus

Name of Group (in English)

Association of Patients with Lupus

Chairperson/Director

Dr. Rita Andrea

Official Address & Tel. No.

Praça Francisco
Sá Carneiro No. 11, 2./ Esq.
1000-160 Lisboa
Portugal

Tel.: +351 1 846 44 83
Fax: +351 1 846 44 84
E-Mail: associacao.lupus@clix.pt

International Contact

Dr. Rosa Maria Goncalves

Address of Contact & Tel. No.

As above

Year Group established

December 1992

Number of Members

1900

Population

9.979.450

Aims of Group

Disclose information to patients, families, doctors and public.
Help patients to defend their rights and frame work with them.
Prepare informative material to teachers and other professions.
Stimulate scientific research and collect numbers of patients in Portugal.

Name of Magazine & Frequency of Publication

'IMPACIENTE'
every 4 months

Activities of Group

Bring patients together; meetings with doctors; distribution of booklets; visits with support of patients and families who need it; courses for patients (for leisure and for leaming works that can be done at home); 2 flats with rooms for patients and families when they need to come to Lisbon; Christmas Bazaar; helping with a small enterprise of painting tiles of a lupus patient; graphic works (the revue is done all here except the printing) kitchen work, etc.

ELEF Register is managed by Maria Toledo (Belgium) maria.toledo@swing.be
ELEF in Internet is managed by Maria Teresa Tuccio (Italy) mariateresa@lupus-italy.org

[ELEF Register]

E.L.E.F. Register Portugal