E.L.E.F. Register
Netherlands

Name of Group (in native language)

Nationale Vereniging LE Patienten

Name of Group (in English)

National Society LE Patients

Chairperson/Director

Peter Bakker

Official Address & Tel. No.

Bisonspoor 3004
NL - 3605 LV Maarssen
Tel.: +31 346 55 24 01
E-Mail: nvle@multiweb.nl

International Contact

Peter Bakker

Address of Contact & Tel. No.

See above

Tel.: +31 10 591 75 65
Fax.: +31 10 592 44 93

Year Group established

1980

Number of Members

2250

Population

15.280.000

Aims of Group

Collect information on all aspects of Lupus, Scleroderma and M.C.T.D. (mixed connective tissue disease).
Improve knowledge of disease for sufferers and doctors.
Bring patients together and help them accept the disease.

Name of Magazine & Frequency of Publication

'Nationale Vereniging LE Patienten'
10 times a year

Activities of Group

Bring patients together, houseroom meetings, meetings with doctors;
trying to get publicity - papers, radio etc.

ELEF Register is managed by Maria Toledo (Belgium) maria.toledo@swing.be
ELEF in Internet is managed by Maria Teresa Tuccio (Italy) mariateresa@lupus-italy.org

[ELEF Register]

E.L.E.F. Register Netherlands