E.L.E.F. Register
Italy


Name of Group (in native language)

Gruppo Italiano per la lotta contro il Lupus Eritematoso Sistemico

Name of Group (in English)

Italian SLE Group
(Italian Group for the fight against the Systemic Lupus Erythematosus)

Chairperson/Director

Giuseppina Politi

Official Address & Tel. No.

Via Arbotori, 14
I 29100 Piacenza

Tel. : +39 0523 75 36 43
Fax : +39 0523 75 36 43
E-Mail: mcppo@tin.it
URL: http://www.lupus-italy.org

International Contact

Maria Teresa Tuccio

Address of Contact & Tel. No.

Via Mazzini, 134/8
I - 16031 Bogliasco (Genova)
Tel.: +39 010 347 03 91
Fax: +39 010 347 03 91
E-Mail: mariateresa@lupus-italy.org

Year Group established

1987

Number of Members

2350

Population

57.121.000

Aims of Group

Inform sufferers from SLE about their disease.
Inform public of SLE symptoms and treatment.
Inform bodies for social assistance about problems of disease.
Raise funds for research.
Prepare informative material and organise meetings to study disease.

Name of Magazine & Frequency of Publication

'Icaro'
Every 4 months

Activities of Group

Publishing newspaper articles.
Providing sufferers information on SLE through publications and a scientific committee of physicians.
Organising scientific meetings.


ELEF Register is managed by Maria Toledo (Belgium) maria.toledo@swing.be
ELEF in Internet is managed by
Maria Teresa Tuccio (Italy) mariateresa@lupus-italy.org

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