E.L.E.F. Register
Germany

Name of Group (in native language)

Lupus Erythematodes Selbsthilfegemeinschaft e.V.

Name of Group (in English)

Lupus Erythematosus Self-help Association.

Chairperson/Director

Borgi Winkler-Rohlfing

Official Address & Tel. No.

Döppersberg 20
42103 Wuppertal

Tel. : +49 202 496 87 97
Fax.: +49 202 496 87 98
E-Mail: lupus@rheumanet.org or leshg@wtal.de
URL: http://www.lupus.rheumanet.org

International Contact

Rudolf Hocks

Address of Contact & Tel. No.

Hinterfeldstrasse 4
65520 Bad Camberg
Tel.: +49 6434 90 88 32
Fax.: +49 6434 90 88 33
E-Mail: Rhlupus@aol.com

Year Group established

1986

Number of Members

2.500

Population

83.000.000

Aims of Group

Exchange of information and experience.
Registration of and advice for patients.
Research into cause and treatment in Germany and abroad.
PR for SLE and avoidance of isolation.
Organization of individual and group care.
Support of regional groups and fundraising.

Name of Magazine & Frequency of Publication

'Der Schmetterling' 'The Butterfly'
4 times a year

Activities of Group

Bimonthly meetings including lectures by specialists.
Patients education by doctors and psychologists.
Organisation of Workshops (about 5 per year).
Supporting financially research.
Help in the social field.

ELEF Register is managed by Maria Toledo (Belgium) maria.toledo@swing.be
ELEF in Internet is managed by Maria Teresa Tuccio (Italy) mariateresa@lupus-italy.org

[ELEF Register]

E.L.E.F. Register Germany